How to talk about dying? The development of an evidence-based model for communication with patients in their last days of life and their family caregivers

Authors

Sibylle Felber, Sofia C. Zambrano, Tommaso Guffi, Felix M. Schmitz, Beate G. Brem, Kai P. Schnabel, Sissel Guttormsen, Steffen Eychmüller (2024)

Abstract

Objective

To help healthcare professionals (HCP) act with more confidence when communicating about approaching death, we sought to develop a communication model for HCP to facilitate conversations with dying patients and family caregivers (FC) in nonemergency situations.

Methods

We used a four-phase integrative approach: (1) creation of a preliminary model based on a systematic literature review and expert knowledge, (2) review of the model draft by international palliative care experts, (3) review by key stakeholders, and (4) final appraisal by communication experts.

Results

After the clinical recognition of dying, the communication model provides a structure and practical communication aids for navigating the conversation based on three phases. It describes the content and relational level as core dimensions of effective conversations about approaching death and highlights the importance of HCP self-awareness and self-care when caring for the dying.

Conclusion

Based on systematic involvement of key stakeholders, the model supports clinicians navigating challenging conversations about approaching death with dying patients and their FC successfully and with more confidence.

Innovation

This study expands the theoretical basis for communication about approaching death and offers a pragmatic model for educational interventions and clinical use.